Waiting...

We're still waiting for the final results of the Monkey's MRI... not very patiently might I add, but waiting all the same.  There were preliminary findings that showed thinning of the Corpus Callosum.  The corpus callosum connects the left and right hemispheres of the brain.  It controls all the communication between each hemisphere.  As of right now we are still unsure if the thinning is a new development or something that has been present since birth (which would be more typical and not progressive).  The Monkey's neurologist is working with a pediatric neuro radiologist and will be reviewing all previous scans and comparing them with the one done last week... he is working really hard to get this done quickly, hopefully it happens sooner rather than later.

I am really trying not to get too carried away with some of the jumps that could be made here but it's hard... for me at least, to step back and be patient... to not get carried away.  

Next week the Monkey will have an EEG... I am so not looking forward to that.  It must be done sleep deprived, aka. cranky, and although it isn't painful, it definitely creates some discomfort and aggravation.  About 24 electrodes will be placed all over his head and are adhered with a toothpaste like gel.  Because they are trying to stimulate a seizure different activities are required.  They will try to get him to hyperventilate by continuously blowing on a pinwheel, they will also use a strobe light, and other visual seizure inducing activities.  Then after all of that they will ask him to go to sleep... which will not happen so they will continuously come into the room to tell him to "just try to sleep".  Is it me or does that sound ludicrous to you too?  

Thankfully these things don't really need to be done more than every year so he'll be all set for awhile now.  He has started complaining about all the appointments lately.  He's made several comments that he doesn't want to go to the hospital any more... kind of heartbreaking.